Hearing Wellness Exposition | by Shirley A. Molenich, MD
Over the last two years I have been writing articles about hearing loss and programs for the general public to better educate them. I became president of Sertoma (Service to Mankind) in 2017, and I realized that hearing disorders really weren’t understood by the public. Sertoma and Hearing Loss Association of America (HLAA) worked together to do our first program in April 2018 and our second program in April 2019. They were both well received.
It is time to talk about our 2020 program, which is scheduled for Saturday, March 28, 2020, at Tarrant County Medical Society building (555 Hemphill St, 76104). The 2020 program will include Jed Grisil, MD (ENT), Terri Jo Edwards, AuD, and Marylyn Koble, MS, CCC-A, Audiology.
Dr. Jed Grisil has been working with our medical society since last fall to address the need to screen patients for hearing disease, specifically the need for audiograms to better define the problem. He and I have talked about the importance of diagnosing hearing problems earlier, because the longer they go undetected, the more time it will take to see success in therapy. His topic is Treating Hearing Loss in the Modern Age: From Prevention to Treatment and Medicine to Surgery.
Terri Jo Edwards, AuD, will also be a speaker. She did speak at our first program in 2018. Her topic at that time was the brain-ear connection and her talk was excellent. One of her areas of interest and concern is developing a coalition between the audiologist and the physician to help improve patient care. This is an area of major interest in relation to the fact that many chronic diseases play a role as risks for hearing loss, i.e., diabetes, smoking, hypertension, cardiovascular disease, as well as genetic issues. There are also issues about various medications causing hearing loss and certainly important prevention issues, such as noise exposure.
Our third speaker is Marilyn Koble, MS, CCC-A, an audiologist who will speak on tinnitus, which is a difficult problem to diagnose and more so to treat.
We will have discussion about the various technological devices that help patients better manage hearing impairment in addition to hearing aids. I will be doing an additional article as we get closer to the event. Sertoma and HLAA appreciate the Tarrant County Medical Society allowing us to use the facility. We especially appreciate the staff support from Rick Geyer and Allison Howard.
Radiologist Tilden L. Childs III, MD, has always liked to fix things, to understand how they work. At a young age, this led to an interest in electronics. “In those days, electronics kits consisted of individual components which mounted on a chassis and not circuit boards, so with individual resistors, capacitors, and inductors along with various other parts, you followed the instructions to build your own devices. I made a multi-band radio, a voltmeter, and an oscilloscope, among other devices,” says Dr. Childs. He smiles. “I appreciate how much my parents humored me.”
With the encouragement of his father, Dr. Childs decided that he wanted to pursue electrical engineering. “I was planning to go in that direction starting in junior high school; maybe even late elementary school.” When he was accepted to Tulane University’s electrical engineering program, it seemed like it was just the next step in the process, but the experience led to a lot of struggle.
The engineering classes at Tulane were intense and bred a very competitive environment among the students. On top of this, during his junior year, Dr. Childs’ mother was diagnosed with cancer, and the prognosis was not good. He struggled to make the grades he desired but was determined to succeed in his studies. Despite the loss of his mother early in his senior year, Dr. Childs pushed on and graduated from Tulane in 1971. During the summer prior to his senior year, he decided that he wanted to go to medical school. On returning to New Orleans to start his senior year at Tulane, by chance he connected with fellow engineering student Tom Planchard. “God just put him right in my life at the perfect time. He was also an electrical engineering student, and he knew all the things you needed to do to get into medical school. He really helped me along the way; it was like he had this play book. He just took me along with him.”
During his senior year, while planning to go to medical school, Dr. Childs became interested in biomedical engineering, but it was only starting to exist as a field at that time. “I wrote a couple of papers on pacemakers in my senior year, and my interest in biomedical engineering continued to develop,” he says. He decided to attend the University of Texas with the goal of getting his master’s in biomedical engineering and then to apply to medical school.
In many ways it was natural for Dr. Childs to go into medicine. His father was a family practice physician, and his uncles, Dr. Robert P. McDonald and Dr. Burgess Sealy, were an Ob/Gyn and a general surgeon, respectively. It was simply a matter of finding the right field where he could delve into his interest in circuitry and systems.
He began at UT in the Fall of 1971, taking additional prerequisite courses for medical school and for the master’s program. “The classes at UT helped to demonstrate that I could be successful in medical school and confirmed that this was an area of interest that I wanted to pursue,” says Dr. Childs. He did not finish the master’s program, though, because he was accepted into Tulane’s medical school after the fall semester and he decided that he was ready to begin the journey to becoming a physician.
After completing medical school, Dr. Childs began an internal medicine internship at the University of Texas Health Science Center at Houston (UTHealth). He was not set on a specialty at that point but was considering internal medicine. Dr. Childs found it to be an intense and emotionally stressful time. During one of his rotations, he was assigned to the MD Anderson Developmental Therapeutic service in the Hermann Hospital, treating patients who had failed all known therapies. “I can still see their faces,” says Dr. Childs. “It was a very difficult time.”
It was during this time, though, that he discovered his true passion; catheter angiography. He had been considering practicing radiology among other specialties, and when he saw one of his patients get a pulmonary angiogram, he knew he wanted to try performing the procedure. “You could put a catheter anywhere in the body, inject dye and take pictures, and there was no surgery involved. Just a puncture wound, and you put the catheter in the vessel.” He laughs. “I now like to say that it was like one of the earliest video games. The ‘action’ was all on the screen and was all catheter and guidewire manipulation. I loved it; it was the ultimate high,” smiles Dr. Childs. “There was no going back.”
Dr. Childs spent three years in the UTHealth radiology residency, and then stayed for another year to participate in their fellowship program, where he received intensive training in neuroradiology, CT, and ultrasound. At this time, they asked him if he would join the teaching staff at UTHealth as Assistant Professor of Radiology. Dr. Childs did so and stayed in the position for two years. While he enjoyed his time in academia, he knew that he wanted to ultimately be in private practice.
In 1983, Dr. Childs was offered a position at Radiology Associates of North Texas, where he has remained for the rest of his career. Having been born and raised in Fort Worth, he jumped at the opportunity to come back to the area. Ever the innovator, within his first year, Dr. Childs had volunteered to go to the North Hills location. While there, he developed state-of-the-art programs in neuroradiology, angiography, CT, ultrasound, and nuclear medicine.
It was during this time that he met his wife, Gretchen. “The husband of one of my cousins knew my wife because she worked at TCU as a graphic artist and he sold printing. My cousin called me up one night and asked if they met anybody that I might be interested in, would I like to go out. I said ‘yes,’ and they called me back 30 minutes later and asked, ‘How would you like to go out to dinner tonight?’ So we went out on a blind date.” They dated for about two years, and then got married in 1988. They have two sons, Tyler and Benjamin. Gretchen became a homemaker, but for many years continued to do freelance graphic art and volunteer work.
Their oldest son, Tyler, who is married to Lauren, works in healthcare information technology. Ben, who is married to Chelsey, is a computer programmer. Dr. Childs is proud of his sons for the people they have become and the paths that they have taken. “As a father, it’s great to see your kids having success in their lives and their careers.”
Dr. Childs spent the next 25 years of his own career at the North Hills Hospital location. For the majority of his time there, he served as the radiology program director. Then, 11 years ago, he moved to the Arlington Memorial Hospital location. “Working with the clinicians and the administration at AMH, we were able to build a full-service breast care program. After five years, we achieved national accreditation through the American College of Surgeons National Accreditation Program for Breast Centers (NAPBC). We recently completed our second three-year re-accreditation. We have also been designated an American College of Radiology Breast Imaging Center of Excellence,” says Dr. Childs. “It’s been an awesome experience!” It was also an exciting change because it has given him the chance to have additional significant patient interaction. “I get to interact with patients and help direct their care on a daily basis,” he shares. “It’s very rewarding.”
Outside of his successful practice, Dr. Childs has maintained an active membership in multiple medical organizations. He has held offices or been on committees and delegations in numerous societies, including the American College of Radiology, TCMS, TMA, AMA, and the Texas Radiological Society (TRS). One of his notable highlights was his presidency of TRS in 2014-15. “The acceptance by my peers in the leadership role and participation in the society was very gratifying,” says Dr. Childs.
As he prepares to step into his new role at TCMS, Dr. Childs is looking forward to a year of raising awareness about the importance of organized medicine, especially in relation to advocacy. He especially hopes to reach out to doctors who are just beginning their careers and may not know what steps need to be taken to effect change. “I can’t stress it enough,” he says. “Young physicians need to invest in their future, whether it is their time or money. The things that happen now will affect them exponentially in the long term. You need to be involved because no one else is looking out for you.”
Dr. Childs leads in these areas with his actions. He takes off multiple weeks a year to allow for his very active role in both advocacy and organized medicine. In the Texas legislative session earlier this year, he testified to the state House Insurance Committee about mammography and actively participated in the discussions on balance billing. As a member of both TMA and TCMS’s advocacy committees, he has been an active participant at the TMA First Tuesdays. Between sessions, he has joined with Medical Society leadership to build relationships with politicians and educate them on the issues that are relevant to physicians and patients.
When he began taking an interest in organized medicine, he had no idea it would go this far, but he is grateful that it did. “My involvement in medical organizations has led to some of the best moments in my career,” he shares. “Early on, I decided to just show up to meetings. Listen and then give input. Take the opportunity to help make a change. Over time, I got to the point that I wanted to concentrate primarily on advocacy. My focus now is participating in advocacy in Texas.”
Richard Strax, MD, a fellow radiologist who first met Dr. Childs while they were completing their training in radiology, thinks he will be an ideal leader for TCMS. “Over the past 40 years Ty and I have been close friends and worked together at the Texas Radiological Society and at the Texas Medical Association. Ty’s greatest quality is his ability to bring people together, a direct extension of his natural warmth and caring nature. The Tarrant County Medical Society will be in good hands with Ty in charge.”
Robert Gloyna, MD, a longtime colleague of Dr. Childs’, couldn‘t agree more. “I have had the pleasure of having Ty as my friend, cohort, and partner for many years. We first met on our years in Houston . . . I have utilized his expertise in radiology, particularly early on in radiological special procedures and now in mammography. I have no doubt that Ty will be an outstanding president.”
At TCMS, we are excited to have Dr. Childs lead us as we prepare for a year of impact on the practice of medicine and our community as a whole.
Our state has the highest rate of syphilis cases in the nation, and five of our metropolitan areas are in the top tier in the nation in reporting of syphilis cases. This dubious distinction comes with increasing congenital syphilis (CS) incidence, too. In 2018 (2019 data are still being compiled) Texas reported 367 cases of congenital syphilis (a 64.57 percent increase in CS compared with published 2017 state data), with 21 of them coming from Tarrant County.
For reference, in 1998, syphilis rates in the US dropped to historic lows and the CDC and other partners wrote of eradicating syphilis in the U.S., but by 2012, syphilis rates had begun to climb rapidly and are soaring today. In 2017, the CDC issued a call to action entitled “Let’s Work Together to Stem the Tide of Rising Syphilis in the United States.” This 12-page document suggested roles for patients, clinicians, public health entities, state health departments, community leaders, biomedical science, universities, and industry partners, among others, in curbing the incidence of syphilis.
However, syphilis rates continue to climb, and Texas is reporting marked year-on-year increases in CS as well. In 2015, the Texas Legislature amended Texas Health and Safety Code, Section 81.090, which mandates syphilis testing of all pregnant women at their first prenatal visit and in the third trimester (2015 CDC Sexually Transmitted Disease Guidelines recommend that the third trimester syphilis screening occur between 28 and 32 weeks of pregnancy). This requires the Texas Department of State Health Services (TxDSHS) to present a biennial CS report to the legislature by January 1 of odd-numbered years for its review and consideration.
The current TxDSHS Congenital Syphilis Report (January 2019) states that “in 2017 nationally, Texas ranked fourth (case rate). There were 166 cases of congenital syphilis reported to DSHS. The rate was 41.7 cases per 100,000 births. Texas accounted for 18.1 percent or nearly one-fifth of the total congenital syphilis cases reported in the United States.”
The CDC estimates that 40 percent of infants born to women with untreated syphilis are stillborn or die as newborns. Usually syphilis is transmitted to the fetus when the mother has primary or secondary syphilis while pregnant, but women with untreated or inadequately treated syphilis, early latent or late latent syphilis, still have a 23 percent chance of an adverse syphilis-related pregnancy outcome. In order to prevent CS, maternal treatment must occur at least 30 days before delivery of the infant (if the mother is treated more than one month prior to delivery, her treatment will address the infection in both mother and fetus).
CS is classified based on the timing of symptoms and signs in the affected child. Early CS presents with vision or hearing impairment, runny nose (“snuffles”), anemia, hepatitis, splenomegaly, long bone abnormalities, developmental delay, and rash manifest before the child’s second birthday. Late CS (from second birthday onward) signs and symptoms include dental and bony abnormalities (remember Hutchinson’s incisors and saber shins?), hearing and vision deficits, and central nervous system manifestations such as gummas and encephalitis, and (rarely) cardiovascular pathologic effects.
TxDSHS has piloted adding CS to regional Fetal Infant Morbidity Reviews in two areas hardest hit by the recent and ongoing rise in CS cases, Harris and Bexar Counties, and is developing an enhanced surveillance system to ensure more complete reporting. The agency is also facilitating improved pregnancy assessments of women with or exposed to syphilis, working to expedite prenatal care referrals for syphilis infected pregnant women, and is partnering with hospitals to provide assessment and management of syphilis in antepartum, intrapartum, and postpartum settings.
Even in the late 1990s and early 2000s with U.S. syphilis rates at historic lows, wide racial and socioeconomic disparities in syphilis rates were observed. Women at highest risk for syphilis during pregnancy include those without insurance (and therefore with late or no access to prenatal care), in poverty, involved in sex work, using illegal drugs, infected with another STD, and in communities with high syphilis rates.
We are still using the same medication to treat syphilis that were transformative in the 1930s and 1940s, and we still rely on syphilis diagnosis and response to treatment which measure antibody titers, having no gold standard for directly establishing active infection (except dark field exam of clinical specimen, rarely done these days).
We need a vaccine against syphilis and new medications to treat it, especially in penicillin-allergic pregnant women with an absolute contraindication to desensitization (such as Stevens-Johnson syndrome). In the meantime, we can use the tools we have to better serve our patients and prevent tragic vertical transmission of an infection we once thought was on its way out.
As a result of early twentieth century atrocities, respect for the individual’s autonomy correctly became a foundational principle of medical ethics. But has our desire to honor patient autonomy resulted in the subjugation of other foundational principles and competing values?
From our founding as a nation we have valued personal liberty and freedom. While we have been inconsistent in our implementation of these values – civil rights come readily to mind – they remain at the core of what it means to be an American.
Ethical codes encompass more than American values and ideals, of course. Western nations united around the barbarity of unethical experiments conducted by Nazi Germany before and during World War II. Determining that this should never happen again, the international community reached a consensus resulting in landmark ethical codes, declarations and reports. These included:
The Nuremberg Code – 1947 – in response to Nazi experimentation on Jews;
The Declaration of Helsinki – 1964 – written for the World Medical Association regarding research on humans;
The Belmont Report – 1979 – drafted, in part, in response to the Tuskegee Syphilis experiments.
All three of these initiatives focused on the individual’s right to decide what can and cannot be done to their bodies. The Belmont Report, drafted by the National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research, a committee that included Tom Beauchamp (yes, that Beauchamp), codified this as the “respect for persons.” Beauchamp and James Childress further developed this concept in their seminal tome, Principles of Biomedical Ethics (Beauchamp & Childress, 1979). Referring to it as “respect for autonomy” it was the first of three ethical principles or “pillars” along with “beneficence” and “justice.”
Today we live in an era of shared decision making, a byproduct of the patient autonomy movement. We are rightfully expected to explain risks and benefits and to obtain informed consent regarding recommended courses of action – all to make certain that the patient’s autonomy is respected. The generation of “doctor knows best” is no more as physicians have become the resident experts who provide information regarding diagnoses and treatment options without prejudice, allowing patients to decide for themselves what they want to do. This movement has and should be celebrated. But what if what the patient wants to do runs up against competing community interests, values, and ethical principles?
This is not a hypothetical question. Tarrant County is the epicenter of the tension between patient autonomy and the common good. A national survey of kindergartners recently revealed that Tarrant County has one of the highest rates of kindergartners with non-medical exemptions for vaccinations. (Olive and Hotez 2018) Now we are seeing the downstream effects of this behavior in the form of preventable diseases like measles, a development that places the greater community in danger. At some point we must ask where the line between the patient’s autonomy and the public good must be drawn.
This issue has broad public implication. Case in point. On December 16th, the U.S. Supreme Court refused to hear an appeal of a 2018 decision made by the 9th U.S. Circuit Court of Appeals. The case in question centered on two Boise city ordinances that prohibit camping or “disorderly conduct” by people sleeping in public places. Those who violated the ordinances were given a nominal fine or briefly jailed. Six homeless residents sued the city in federal court in 2009, itself a testament to judicial efficiency, claiming that the practice violated their constitutional rights under the 8th amendment which prohibits “cruel and unusual punishment.” (Chung 2019). The 9th Circuit sided with the plaintiffs.
This case, like most, is nuanced. The ordinances are predicated on there being temporary shelter options for the homeless. Two Boise shelters have policies to never turn away anyone for lack of space, so the city ordinances had been continually enforced. However, these shelters, run by Christian organizations that have mandatory religious programming and enforce limits on the number of days a person can stay, raised the question as to whether or not the homeless truly have viable options. This factored heavily in the 9th Circuit’s decision. Still, does this decision not undercut a municipality’s ability to maintain public health and safety? Again, where do we draw the line?
The adage “Your right to swing your fist ends where my nose begins” – which originated in the nineteenth century temperance movement – is often cited in arguments regarding personal freedom and the exercise of one’s liberty. Prohibitionists, seeking to restrict the sale and consumption of alcohol, which they considered to be a public nuisance and societal ill, sought to impose their will on the larger community. That particular issue has long been settled, but the underlying sentiment continues to raise its head as we consider the ways in which the exercise of perceived individual rights and autonomy have crept into the national dialog. For instance:
In an era of limited resources and escalating costs, how do we manage the expectations of patients who want “everything done” when the interventions they seek will not improve their outcome, may be harmful and divert resources from places where they might be better utilized.
Are physicians obligated to provide services even if they consider them to be unethical or fiscally irresponsible?
How do we address those in our community who opt out of public health initiatives, like vaccination, when their failure to participate puts others in the community at risk?
How should the community manage the health consequences emanating from patients exercising their rights to engage in at-risk behaviors? Should government impose public smoking bans? Should patients who engage in high-risk behaviors that result in chronic illness or injuries that utilize limited resources be managed differently within the system? If so, how?
How should we address hot-button political topics like gun control and firearm safety, especially in the current political climate?
Should a discussion of the public good become part of all ethics consultations?
Recognizing the importance of our respect for patient autonomy while also honoring our commitment to the public good, the Tarrant County Academy of Medicine’s Ethics Consortium will devote its annual symposium, Healthcare in a Civil Society, to this topic. The program, which will be February 1st (see related information on page 18), will feature healthcare leaders representing public health, the law, clinical ethics, and public policy. While we don’t expect to solve all of the problems, we do plan to take some first steps toward finding local solutions to this important healthcare issues. You are welcome and encouraged to join us for this engaging CME event.
It was my surgery rotation. I was still adapting to the rotation life, attempting to appear confident while trying to recall minute details from first year anatomy to impress my attending. As we rounded on patients, my attending informed me that one of our patients had an extremely poor prognosis as surgery was unable to completely resect a tumor. When we approached the patient’s room to break the unfortunate news to her and her family, my heart was pounding, and I clumsily grasped my clammy hands in front of me. Thoughts were racing through my head – how were we going to break the news? Will I be able to keep my cool? What was the right thing to say in this situation? Where did one even start when talking to a patient about dying?
As a child, my first impression of doctors was akin to that of superheroes. I saw them as healers whose profession was dedicated to helping patients lead quality lives against adversity. To my simple mind, I found it astounding as doctors worked with their team to do the impossible from putting broken bones back together or performing delicate surgeries to remove a malignant tumor. The doctors with their team were Avengers donning white coats, always there to help save the day. While I shed my idealistic perspective as I grew older, I continued to hold on to the essence of my initial view of doctors as healers who worked diligently to do everything they could for their patients.
When I began volunteering with a hospice, I realized I had yet to uncover and consider a vital concept in the patient-provider relationship – death. It was an obvious and inevitable experience within the healthcare field, but somehow, I had never given pause to what it meant. In my classroom years of medical school, I was constantly focused on the treatment. The end goal was “what can I do to help this patient get better?” or “how can I get this patient discharged?” But here, I was faced with patients who were terminally ill and had accepted their outcome in life. These patients were not necessarily looking to get better but instead wanted to comfortably live out their remaining days. The care team was doing their utmost to ensure the patient felt no pain and helped empower the patient in the face of death. They worked alongside the patient to ensure their wishes were clearly expressed and would be fulfilled upon their death. As I spent time with the patients, listening to their life stories and dreams, I started to refocus my understanding of medicine and what it meant to be a doctor.
As doctors, it is an unfortunate truth that we cannot save each and every patient. It is a difficult and bitter fact, especially considering the motivation for many of us entering the healthcare field stems from a want to help people. At first, I felt insecure, scared, and anxious when approach the topic. I was afraid I would somehow offend the patient, or they would be angry with me thinking that I had failed them. However, as I watched my surgery attending, I realized talking about death while an unfortunate topic, could be liberating. My attending quietly sat next to our patient, held her hand, and talked with her honestly. He assured her that while we would be doing as much as we could to help her, we wanted her to start considering her end-of-life wishes. The patient turned to my attending with tears in her eyes and told him she was thankful for his honesty. She appreciated that instead of leaving her in the dark to incessantly worry and question her future, his guidance allowed her to maintain her autonomy in death.
As I continue my own journey in medical school, I hope to continue to face my own insecurities regarding the topic of death so I can be a better doctor for my patients. Rather than superheroes who go around fixing and saving everyone, I now see doctors as companions who guide a patient on their journey of healing and empowerment through emotions of joy, relief, and grief… even in death.
As I begin this year, please let me say “Thank you!” for the opportunity to serve as the president of the Tarrant County Medical Society. It is truly an honor and a privilege to be allowed to serve my peers in this capacity. Indeed, participating in organized medicine has become my passion and is an integral part of my professional life. My medical “family” extends from coast to coast. At the Interim AMA meeting in late November, for example, I enjoyed visiting with and collaborating with friends from the TCMS, the Texas Medical Association, the American College of Radiology, and from the other state medical and specialty societies from around the country while working on the myriad issues facing the medical profession today. It is through my participation in organized medicine that I have come to realize and appreciate the diversity of our profession, both in the range and breadth of our opinions and approaches to the practice of medicine as well as the diverse, and sometimes divisive, internal and external pressures and issues facing the House of Medicine. However, I am more than ever convinced that the goal of service to and care of our patients remains the number one priority. The House of Medicine needs to remain unified in this mission. I encourage all of us, no matter what our employment or practice situation, to maintain unity by participation in organized medicine.
From time to time people ask me how to become involved in or how to further their participation in organized medicine. As I reflect on the many opportunities that abound for one to serve in this capacity, I wish to share with you some of the things I have learned and observed on my journey in this complex and exciting world of organized medicine. This is not an all-inclusive listing of opportunities and venues but rather a “how to” guide based on some of my experiences and thoughts.
Participation “The action of taking part in something”
So, first and foremost, show up! Be present! Within the overall context, start by recognizing that there are local, state, and national general medical organizations/associations (TCMS, TMA, and AMA, for example) as well as numerous specialty colleges and societies (local, state, and national). So, join the appropriate organizations. Then, get involved in the activities of your society. Make the effort to attend meetings. Within each organization, there are committees, councils, commissions, and/or delegations pertaining to the various issues and aspects of medicine. So, find an area of interest and help by attending the meetings and getting involved with a committee, council, commission, and/or delegation. Also, understand that colleges, societies, and associations are interconnected, to some extent, such that participation in one can result in participation in others. So, for example, consider becoming an alternate delegate and then a delegate representing your organization at other societies. This could include helping to represent the TCMS at the TMA. Also follow the same steps in your specialty college and sub-specialty societies. Importantly, consider finding a mentor to help advise and guide you as your participation increases and as you ascend to new levels of leadership.
Another parallel path, particularly for those with a bent for politics, and not exclusive to the discussion above, is to be involved in the political process through advocacy, which has become a primary function of organized medicine.
Advocacy (from Wikipedia) “Is an activity by an individual or group that aims to influence decisions within political, economic, and social systems and institutions. Advocacy includes activities and publicationsto influence public policy, laws, and budgets by using facts, their relationships, the media, and messaging to educate government officials and the public. Advocacy can include many activities that a person or organization undertakes including media campaigns, public speaking, commissioning, and publishing research. Lobbying (often by lobby groups) is a form of advocacywhere a direct approach is made to legislators on a specific issue or specific piece of legislation.”
The first and quickest way to start your advocacy effort is to join the Political Action Committees (PACs) associated with your organizations. PACs are integral to advocacy (and lobbying), providing structured organizations which provide you the opportunity to help in the selection and support of candidates and issues relevant to medicine. Next, take an active role in the political process as afforded by the various organizations and PACs. Begin to establish a relationship with your representatives and senators (state and national). This seems difficult to most people, but the TCMS and the TMA can help facilitate this. An excellent venue to begin the dialogue at the state level is to attend the TMA First Tuesdays during the biennial legislative session by accompanying the TCMS to the Texas Capitol. This immersive exercise is a great first step. This will “break the ice” to help you become comfortable talking with your elected officials and their staff. You can then explore additional ways to become more effective in advocating for your causes. However, rather than wait for the next legislative session (January 2021), consider meeting with your elected officials or their appropriate staff in their district offices to introduce yourself and then to offer to give help and insight on issues and policies being developed during the “interim” year (2020) prior to the next session. During the session, follow the action at the Capitol online through the Texas Legislature Online link which includes live and recorded access to committee meetings and sessions of the House and the Senate. (We are fortunate to have such robust access to our Texas political process.) Even more, consider going to Austin to testify in committee hearings on issues of importance to you. For those with higher level commitment ambitions, service opportunities exist through participation in state agencies. And finally, consider running for public office! (Or, at least actively support those who do.)
Participation in organized medicine has become my avocation as well as my current passion, and I hope others (many others) will come to see the wisdom and necessity of this stance. The future of medical practice always has and always will evolve, both in what we do and how we do it. It is our responsibility, as it always has been, to be on the forefront of this change and to guide this process along the path that will best benefit our patients and society as a whole, without leaving any individual patient unaccounted for. We have been fortunate to have such active participation with so many excellent leaders in Tarrant County. We can and should all work together to continue to grow the atmosphere of collegiality and cooperation by supporting the House of Medicine. As physicians, we are all leaders and we should, we must, recognize and accept this challenge and responsibility.
In my next article, I plan to give longitudinal examples of how an individual’s participation in medical organizations can help to guide and facilitate medical policy development and implementation. Again, thank you for this opportunity to serve!
This is a letter to the Editor at the Fort Worth Star-Telegram from the Tarrant County Ethics Consortium. Reprinted with permission.
We have monitored the scenario surrounding Tinslee Lewis at Cook Children’s for the last two months as it has moved the issue of the Texas Advance Directives Act (Texas ADA, 1999) in general and the 10-day rule in particular, back onto the front burner. While we agree with the Fort Worth Star-Telegram’s assertion that the Texas ADA is imperfect, we do not agree that extending the 10-day period that hospitals have to find an alternative facility is the solution (“Don’t paint Cook Children’s as a villain in tragic Tinslee Lewis life support case,” January 04, 2020).
As technology has advanced, so have the options available to treat critically ill patients. Many people facing acute life-threatening events find aggressive medical intervention a life-saving bridge until their bodies can recover. But there is a point past which no amount of medical intervention will help. In fact, it may hurt.
For the last 40 years healthcare facilities have increasingly relied upon ethics committees to aid them with the unenviable task of examining clinical situations in which medical technology contributes to a moral conundrum in which there are no good options. The typical ethics committee consists of an interdisciplinary team of healthcare workers, often employees of the institution, and also community members who have no official relationship with the facility. In the rare instance when a family insists on aggressive treatment that the medical team believes is non-beneficial or even harmful, either party may request a formal hearing before the ethics committee. The committee’s objective is to hear the concerns of both the family and the medical team and discern the ethical thing to do for the patient. If the committee decides to withdraw aggressive interventions that the family wants continued, the facility may invoke the Texas ADA.
The Texas ADA leverages the expertise of healthcare and ethics professionals to promote a deliberative process at the bedside, carefully considering the family’s desires for treatment in light of the medical realities to discern the best treatment options available for the patient. As medical professionals, we have an imperative to honor our patients’ treatment desires. While we sympathize with the Lewis family, their desire to continue aggressive interventions does not give them – or anyone – the right to demand treatment that violates the norms of the medical profession, the caregivers’ moral integrity or the long-standing ethical precept of “do no harm.”
Much of the criticism of the Texas ADA focuses on the section that allows a health care facility caring for a patient to discontinue life-sustaining treatment ten days after giving written notice. During this time the treating facility and the family seek to identify another facility willing to assume care. Opponents claim that ten days is not long enough to do this. We disagree.
A longer waiting period will not bring hope to a hopeless situation; it will only prolong suffering.
First, every case that gets to the point of invoking the Texas ADA has been thoroughly vetted by the medical team in consultation with the family. When it becomes clear that an impasse is imminent the search for an alternative facility begins, usually weeks if not months before any formal hearing of the ethics committee.
Second, the law allows a judge to grant an extension if, given more time, there is a reasonable likelihood that another facility would be willing to accept the patient. Finding a willing facility usually does not happen since a situation deemed futile by a medical team in Fort Worth would be considered no less futile anywhere else. Even so, judges often grant extensions, especially in high profile cases.
Third, many families have not dealt with the gravity of their loved one’s condition, a reality they can no longer ignore once the 10-day rule is invoked. Extending the 10-day period will not make their grief any less and will not increase the likelihood of finding a facility willing to assume the patient’s care.
We understand that the Texas Advance Directives Act is imperfect, but this law, including the 10-day rule, are better than what we had before when actively dying patients with no hope of recovery were subjected to indefinite pain and suffering because well-meaning loved ones were unwilling to let them go. A longer waiting period will not bring hope to a hopeless situation; it will only prolong suffering. So, while we strongly advocate for initiatives that will improve the health and wellbeing of Texans, we believe that extending the 10-day rule is not one of them.
The Tarrant County Academy of Medicine Ethics Consortium is a diverse, non-partisan group of people interested in health care and ethics in Tarrant County. We are physicians, lawyers, educators, nurses, chaplains, administrators and other interested citizens who seek to improve the health and well-being of the diverse communities that make up North Texas by sharing the application of ethical principles to current healthcare issues through education, advocacy, and collaboration, and by encouraging civil conversation and dialogue.
As a result of early twentieth century atrocities, respect for the individual’s autonomy correctly became a foundational principle of medical ethics. But has our desire to honor patient autonomy resulted in the subjugation of other foundational principles and competing values?
From our founding as a nation we have valued personal liberty and freedom. While we have been inconsistent in our implementation of these values – civil rights come readily to mind – they remain at the core of what it means to be an American.
Ethical codes encompass more than American values and ideals, of course. Western nations united around the barbarity of unethical experiments conducted by Nazi Germany before and during World War II. Determining that this should never happen again, the international community reached a consensus resulting in landmark ethical codes, declarations and reports. These included:
The Nuremberg Code – 1947 – in response to Nazi experimentation on Jews;
The Declaration of Helsinki – 1964 – written for the World Medical Association regarding research on humans;
The Belmont Report – 1979 – drafted, in part, in response to the Tuskegee Syphilis experiments.
All three of these initiatives focused on the individual’s right to decide what can and cannot be done to their bodies. The Belmont Report, drafted by the National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research, a committee that included Tom Beauchamp (yes, that Beauchamp), codified this as the “respect for persons.” Beauchamp and James Childress further developed this concept in their seminal tome, Principles of Biomedical Ethics (Beauchamp & Childress, 1979). Referring to it as “respect for autonomy” it was the first of three ethical principles or “pillars” along with “beneficence” and “justice.”
Today we live in an era of shared decision making, a byproduct of the patient autonomy movement. We are rightfully expected to explain risks and benefits and to obtain informed consent regarding recommended courses of action – all to make certain that the patient’s autonomy is respected. The generation of “doctor knows best” is no more as physicians have become the resident experts who provide information regarding diagnoses and treatment options without prejudice, allowing patients to decide for themselves what they want to do. This movement has and should be celebrated. But what if what the patient wants to do runs up against competing community interests, values, and ethical principles?
This is not a hypothetical question. Tarrant County is the epicenter of the tension between patient autonomy and the common good. A national survey of kindergartners recently revealed that Tarrant County has one of the highest rates of kindergartners with non-medical exemptions for vaccinations. (Olive and Hotez 2018) Now we are seeing the downstream effects of this behavior in the form of preventable diseases like measles, a development that places the greater community in danger. At some point we must ask where the line between the patient’s autonomy and the public good must be drawn.
“The generation of “doctor knows best” is no more as physicians have become the resident experts…. This movement has and should be celebrated.”
This issue has broad public implication. Case in point. On December 16th, the U.S. Supreme Court refused to hear an appeal of a 2018 decision made by the 9th U.S. Circuit Court of Appeals. The case in question centered on two Boise city ordinances that prohibit camping or “disorderly conduct” by people sleeping in public places. Those who violated the ordinances were given a nominal fine or briefly jailed. Six homeless residents sued the city in federal court in 2009, itself a testament to judicial efficiency, claiming that the practice violated their constitutional rights under the 8th amendment which prohibits “cruel and unusual punishment.” (Chung 2019). The 9th Circuit sided with the plaintiffs.
This case, like most, is nuanced. The ordinances are predicated on there being temporary shelter options for the homeless. Two Boise shelters have policies to never turn away anyone for lack of space, so the city ordinances had been continually enforced. However, these shelters, run by Christian organizations that have mandatory religious programming and enforce limits on the number of days a person can stay, raised the question as to whether or not the homeless truly have viable options. This factored heavily in the 9th Circuit’s decision. Still, does this decision not undercut a municipality’s ability to maintain public health and safety? Again, where do we draw the line?
The adage “Your right to swing your fist ends where my nose begins” – which originated in the nineteenth century temperance movement – is often cited in arguments regarding personal freedom and the exercise of one’s liberty. Prohibitionists, seeking to restrict the sale and consumption of alcohol, which they considered to be a public nuisance and societal ill, sought to impose their will on the larger community. That particular issue has long been settled, but the underlying sentiment continues to raise its head as we consider the ways in which the exercise of perceived individual rights and autonomy have crept into the national dialog. For instance:
In an era of limited resources and escalating costs, how do we manage the expectations of patients who want “everything done” when the interventions they seek will not improve their outcome, may be harmful, and divert resources from places where they might be better utilized.
Are physicians obligated to provide services even if they consider them to be unethical or fiscally irresponsible?
How do we address those in our community who opt out of public health initiatives, like vaccination, when their failure to participate puts others in the community at risk?
How should the community manage the health consequences emanating from patients exercising their rights to engage in at-risk behaviors? Should government impose public smoking bans? Should patients who engage in high-risk behaviors that result in chronic illness or injuries that utilize limited resources be managed differently within the system? If so, how?
How should we address hot-button political topics like gun control and firearm safety, especially in the current political climate?
Should a discussion of the public good become part of all ethics consultations?
Recognizing the importance of our respect for patient autonomy while also honoring our commitment to the public good, the Tarrant County Academy of Medicine’s Ethics Consortium will devote its annual symposium, Healthcare in a Civil Society, to this topic. The program, which will be February 1st, will feature healthcare leaders representing public health, the law, clinical ethics, and public policy. While we don’t expect to solve all of the problems, we do plan to take some first steps toward finding local solutions to this important healthcare issues. You are welcome and encouraged to join us for this engaging CME event.
Texas is growing from, and in, all directions. A dearth of pediatric neurosurgeons in some regions of our state prompted our pediatric neurosurgical group to help. We have been affording 24/7 coverage to children’s hospitals in two other cities over the past 18 months. The arrival of new pediatric neurosurgeons to the afflicted hospitals has finally provided longed-for relief, especially to my partners, who shouldered more than their share of the clinical and administrative load. It is gratifying to witness my younger colleagues deftly assume the care of pediatric neurosurgical patients in Tarrant County and beyond. My Cook Children’s neurology staff also helped keep the wheels turning this year.
TCMS COLLEAGUES
TCMS officers filled in, and advised, enthusiastically during my absences from TCMS board meetings and special events occasioned by my travels, demonstrating their usual good will and devotion to the organization. The increasing scope of Project Access testifies to Tarrant County physicians’ altruism. TCMS members quietly serve on unheralded committees (e.g., Physician Wellness) that do a world of good for physicians. Any contributions I may have made pale in comparison to theirs. The Tarrant County Physician editorial committee has striven to render my dollops of prose throughout Volume 91 less incoherent, while working to create publications the whole membership can enjoy.
TCMS ALLIANCE MEMBERS
Their dedication to the family of medicine remained evident throughout 2019. Highlighting important public health concerns, including pediatric head injury (Hard Hats for Little Heads) and immunization efforts sponsoring public education and free vaccination events (Be Wise Immunize)—vital in these days of appalling immunization agnosticism. Their contributions continue: community outreach, funding of Allied Health scholarships, and offering solace to families of our deceased or disabled physicians. Together with TCMS staff, our Alliance is recruiting more young Alliance members and drawing their physician spouses into organized medicine.
TCMS STAFF
“Things ran smoothly” is a huge understatement. Especially satisfying is witnessing completion of the TCMS building renovation. Our staff arranged and executed many TCMS organizational, political, and social events this year. Beyond the business of running TCMS, our staff facilitates developing working relationships between TCMS physicians and established community players, including City Hall, the DFW Hospital Council, both medical schools, EMS, and the press. TCMS staff are the operations backbone of Project Access.
MY WIFE
Most of all, I want to thank Angela, who encouraged me to participate in the TCMS years ago. There is virtually no Alliance duty or position that she has not undertaken at either the state or local level. As my term expires, she reminds me that the disappointment one senses before the incomplete project or unmet goal betrays not failure, but lofty goals yet to be achieved.
It’s critical, but often lost on patients, that the healthy herd get flu shots to protect the extremely vulnerable few. This includes the very young and old, pregnant women, persons with heart disease (including congenital heart disease), chronic lung, liver, and kidney disease, cancer, diabetes, and other immunocompromising conditions or therapies.
By Catherine Colquitt, MD
Flu season is now upon us, and we are bracing for another memorable year, based on CDC and World Health Organization (WHO) forecasts. Influenza vaccine was first produced in 1945, but due to constant antigenic shifts and drifts in the hemagglutinins and neuraminidases on the influenza virus lipid envelope, flu vaccine targets, and thus vaccine composition, changes yearly. Constant revision of the vaccine is believed to explain, at least in part, its underutilization by a flu vaccine-weary public.
Flu vaccine strain selection starts in February when WHO experts meet to determine which three or four strains of circulating virus will make the cut for the various upcoming annual flu vaccines. After initial and advanced data analysis, the final flu vaccine strains are set in April, and production, packing, and distribution begin to make ready for orders to be filled each August. Influenza is a transmissible disease, but flu is not as highly infections as, for example, measles, caused by the Rubeola virus. On average, a person with influenza may account for four additional cases of influenza as opposed to 17 additional infections attributable to a single measles case.1 The CDC’s just-released data on the 2018-2019 influenza season and vaccine coverage shows that during the flu season just concluded, 62.6 percent of U.S. children ages six months to 17 years received at least one dose of flu vaccine.2 This is a 4.7 percent increase in coverage over the 2017-2018 flu season. The coverage rate for the same age group in Texas was only slightly lower (61.8 percent). Nationwide the highest flu vaccine coverage was in Massachusetts (81.1 percent) and the lowest was in Wyoming (46 percent). Among U.S. adults ages 18 to 64, coverage with flu vaccine for 2018-2019 was only 45.3 percent, but represented a significant increase from 37 percent during the 2017-2018 flu season.
Many of our patients avoid influenza vaccine due to a commonly held belief that it is not a life-threatening infection or because they have been led to believe that the vaccine itself is unsafe or may transmit influenza. We try to impress upon our patients the importance of taking the yearly flu vaccine in order to prevent flu or mitigate the severity of influenza if they contract it. It’s also critical, but often lost on patients, that the healthy herd get flu shots to protect the extremely vulnerable few. This includes the very young and old, pregnant women, persons with heart disease (including congenital heart disease), chronic lung, liver, and kidney disease, cancer, diabetes, and other immunocompromising conditions or therapies.
When patients stiffen at the suggestion of the annual flu shot, I have also found it helpful to quote the astonishing 2017-2018 U.S. influenza mortality data—79,000 deaths. We also remind patients that use of the vaccine means fewer sick days taken and no household spread, and less out-of-pocket costs for clinic, urgent care, ER, or hospital stays. There are also medication costs, possible treatment of complications, such as post influenza pneumonia, and, appealing to their altruistic impulses, the responsibility of the strong to shield the weak when it comes to flu.
It’s also good to remind patients that they are infectious for 24 hours prior to the onset of flu symptoms and for five to seven days after symptom onset. The incubation period for influenza ranges from one to four days, with an average of two days.
For the 2018-2019 influenza season, vaccine coverage among healthcare workers was 78.4 percent overall, and physicians now exceed pharmacists in flu vaccine coverage (96.1 percent for physicians versus 92.2 percent for pharmacists per CDC). Nurses had 90.5 percent flu vaccine coverage last season and advanced practice providers were 87.8 percent covered last season. The CDC preliminary estimates are that for the season just ended there were 36,400 to 61,200 U.S. deaths from influenza (AT&T Stadium capacity is 106,681), in addition to 37.4 to 42.9 million cases of flu, 17.3 to 20.1 million medical visits, and 531 to 647 thousand hospital visits.3 For patients who argue that the vaccine is ineffective, experts (not yet published Advisory Committee on Immunization Practices 6/27/19) believe the flu vaccine to be 30 percent effective in preventing influenza-like illnesses and hospitalizations, which translates to prevention of 40 to 90 thousand hospitalizations.4
But perhaps the most important words for some of our vaccine-hesitant patients to hear is that we, along with our staffs and families, take our own advice and get immunized, too!
References
1. Influenza and the 2004 Flu Vaccine Shortage, 2005, Tim Brookes
2. CDC Flu Vaccine Coverage, US 2018-2019 Influenza Season
3. CDC Preliminary Disease Burden of Influenza 2018-2019
4. Prevention and Control of Seasonal Influenza with Vaccine, Advisory Committee on Immunization Practices, US 2019-2020 Flu Season